The Power of Consumer Activism and the Value of Immunization Registries in a Pandemic (2024)

Abstract

Objective

If public health agencies used direct communication channels to individuals by building on existing immunization networks, the public would receive correct information quicker during a pandemic. Furthermore, there is value that can be leveraged from social networks to advance public health efforts to manage disease events and encourage consumers being more proactive in managing their own health care.

Introduction

Epidemiologists and public health professionals work to ensure the risk and impact of existing and emerging diseases are minimized and do not turn into a pandemic. Timely and accurate information has become imperative as the world has become more interconnected through travel and technology.

Recently, new information systems have played a key role in improving public health’s early warning and case management for disease outbreaks. Improved analytics to predict risk in populations have helped researchers open new doors to disease cures and medicines. The role of technology and public health to support these efforts has become more valuable.

Health information systems are traditionally used for electronic medical records or payer billing systems and are not paired with technology advancements. Efforts today to link information and technology to engage consumers are championed by health plans and healthcare providers. Empowering individuals to be proactive when presented with their medical records is not a simple problem to solve. Information must be actionable but it still may not achieve the desired success.

What if the health community engaged consumers with a social mission to help them fight disease outbreaks by becoming frontline activists to report occurrences and outcomes, and become “intelligent connections” to extend the right information to their social networks? This would encourage consumer technology to be better integrated with health information technology with continued investment in sustaining critical public health ecosystems.

A large part of health information systems are immunization information systems (IIS) where administered vaccines are documented in a confidential computer based system in a specific geographic area1. The IIS can be used for disease surveillance purposes and provide valuable information to public health authorities2. Recently, MyIR was created where any IIS, pharmacy or provider can provide patients direct access to family immunization records. Providers can communicate to patients using MyIR to increase engagement and send vaccine reminders.

Methods

A public-health engagement approach to empower consumers begins by offering individuals a mission they care about that will contribute to the social good and make them more attentive to their own healthcare. Our approach was to place a mission for every cell phone owner by using a commonly understood health event.

The most significant public health event in the 20th century was the power of vaccines and the most significant action an individual can take to reduce their risk of a vaccine-preventable disease is to stay up-to-date on their immunizations3. However, there is a gap between believing in the value of immunizations and ensuring one’s immunizations are current. The challenge is to engage individuals, empower them to be advocates of their own health and in an outbreak, become sources of trusted public health messages as they communicate in their social network.

A few experiments were conducted using MyIR.

Increase Sustainment

Users who had not used MyIR in over 30 days were contacted. The baseline looked at users that were logging into MyIR more than once a month. The target was non-engaged users which were about 8,000 accounts.

Customer Engagement I

In November 2017, an email was sent to 7,772 users that asked them, \"Did you get your flu shot?\" If they clicked Yes, they received positive affirmation. If they clicked No, the message was an encouragement to get their flu shot before Thanksgiving 2017.

Customer Engagement II

In January 2017, a Healthy Lifestyle page was created within MyIR. It featured a food blogger who offers readers nutritious easy meal ideas.

Outreach Efforts

MyIR Louisiana users were targeted who had failed to complete the two step enrollment process to access their immunization histories.

Efficacy of Flu

In April 2018, 212 MyIR users in Washington and Louisiana were asked: Did you get a flu shot this year? Do you feel like you got the flu this year?

Results

Increase Sustainment

27% of people opened the email and 3.6% of these individuals used MyIR within 30 days to access their records.

Customer Engagement I

9% answered the question with 80% saying “YES” they got their flu shot. As a result, 25 new immunizations were administered to these individuals within 60 days.

Customer Engagement II

A 7.1% increase in returning users were tracked and a 9.1% increase in engaged users. There was a 6.7% increase in average session duration.

Outreach Effort

556 emails were sent which contained instructions to finalize enrollment for MyIR. There was a 30% open rate and 50 individuals completed the process.

Efficacy of Flu

78% responded they did receive the flu shot this year. Of these, 61.5% felt they got the flu this year which equates to a 38.5% efficacy rate. In February, CDC had determined the interim estimates for the effectiveness of the influenza were 36%4.

Conclusions

Our aim was to show examples where public health agencies using direct communication channels to individuals could increase the efficacy of reaching the public with correct information. It was not designed to prove to be statistically effective but to show the potential of engaging individuals that have access to their immunization records. These early experiments and the growing data assets in IIS''s help create a framework and technical platform to accelerate the potential value of engaging individuals in response plans for pandemic preparedness.

Immunization information systems and technology have reached a point where information is available across wide networks of stakeholders. While health plans, providers and pharmacists struggle to engage their networks, by encouraging patients to be proactive in their healthcare, public health immunization assets may be the tipping point to accelerate this movement.

Continued investment of immunization programs, private sector innovation, and consumer empowerment are essential to evolve and sustain data assets. As these assets create added value to each stakeholder, the investment will create a positive return. The value of this virtual ecosystem is untapped and opportunities to use it to drive down healthcare costs and improve patient outcomes are unlimited.

References

1. Centers for Disease Control Prevention (CDC). About Immunization Information Systems. Atlanta: CDC; 2012 May 15 [Cited 06 Jun 2018]. Available from: http://www.cdc.gov/vaccines/programs/iis/about.html

2. Derrough T, Olsson K, Gianfredi V, et al. Immunisation Information Systems – useful tools for monitoring vaccination programmes in EU/EEA countries. Eurosurveillance [Internet];22(17):30519. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5434883/#r1

3. Centers for Disease Control and Prevention (CDC). Ten great public health achievements--United States, 1900-1999. MMWR Morb Mortal Wkly Rep [Internet]. 1999 Apr 2;48(12):241-3 [Cited 06 Jun 2018]. Available from: https://www.cdc.gov/mmwr/preview/mmwrhtml/00056796.htm

4. Morbidity and Mortality Weekly Report (MMWR): Interim Estimates of 2017-18 Seasonal Influenza Vaccine Effectiveness – United States, February 2018. Centers for Disease Control and Prevention [Internet]. 2018 Feb [Cited 2018 Apr 24]. Available from: https://www.cdc.gov/mmwr/volumes/67/wr/mm6706a2.htm

The Power of Consumer Activism and the Value of Immunization Registries in a Pandemic (2024)

FAQs

What are the benefits of the immunization registry? ›

Helps ensure that immunizations are up-to-date, even as families move or experience changes in healthcare coverage. Helps to ensure the correct number of shots are given – no duplicates. Helps protect families from vaccine-preventable diseases.

What is the purpose of the immunization information system? ›

Immunization information systems (IIS) help providers, families, and public health officials by consolidating immunization information into one reliable source. The information can then be used to guide patient care, improve vaccination rates, and ultimately reduce vaccine-preventable disease.

Why is vaccination and immunization important? ›

When you get a vaccine, your immune system responds. We now have vaccines to prevent more than 20 life-threatening diseases, helping people of all ages live longer, healthier lives. Immunization currently prevents 3.5-5 million deaths every year from diseases like diphtheria, tetanus, pertussis, influenza and measles.

What are the benefits of vaccines to society? ›

Diseases can travel quickly through a community and make a lot of people sick. However, when enough people are vaccinated against a certain disease, the germs can't travel as easily from person to person, and the entire community is less likely to get the disease.

Why is immunization important in healthcare? ›

Vaccines help your body create protective antibodies—proteins that help it fight off infections. By getting vaccinated, you can protect yourself and also avoid spreading preventable diseases to other people in your community.

Why is immunization compliance important? ›

Adherence to schedule is critical for providing maximum effectiveness against vaccine-preventable diseases in the community. This is of paramount importance for diseases that are continuously circulating because they can cause large outbreaks.

What is the main objective of immunization? ›

Immunization prevents diseases, disabilities, and deaths from vaccine-preventable diseases (VPDs), such as cervical cancer, poliomyelitis, measles, rubella, paroditis, diphtheria, tetanus, pertussis, hepatitis A and B, bacterial pneumonias, rotavirus diarrheal diseases and bacterial meningitis.

How does immunization protect us? ›

Vaccination is a simple, safe, and effective way of protecting you against harmful diseases, before you come into contact with them. It uses your body's natural defenses to build resistance to specific infections and makes your immune system stronger.

What is the purpose and principle behind immunization? ›

The principle of vaccination is to induce protection against a pathogen by mimicking its natural interaction with the human immune system. The vaccine reduces the risk of complications and mortality following subsequent exposure to an infectious agent.

How do vaccines affect public health? ›

Through use of vaccines, we have eradicated smallpox and nearly eliminated wild polio virus. The number of people who experience the devastating effects of preventable infectious diseases like measles, diphtheria, and whooping cough is at an all-time low.

What are the main purposes of vaccines? ›

How do vaccines work? Vaccines help your immune system fight infections faster and more effectively. When you get a vaccine, it sparks your immune response, helping your body fight off and remember the germ so it can attack it if the germ ever invades again.

How effective are vaccines? ›

Efficacy for both vaccines is high, with estimates ranging from 94–100% (Werzberger et al.

What are the benefits of immunisation? ›

The benefits of immunisation

stops people dying from diseases that could be prevented. reduces the risk of having long-term health issues and disabilities caused by disease. stops people from passing diseases to their whānau, particularly to those who may not have strong immune systems.

What are the advantages and disadvantages of immunization? ›

They help us keep future generations safe and free of vaccine-preventable illnesses. But, not everyone agrees with immunization and a lot of experts deem them to be detrimental to our health because of the dangerous and objectionable ingredients they contain and the severe health complications they can trigger.

How do vaccines help the economy? ›

their vaccination programmes and budgets accordingly.

macroeconomic levels, for example by reducing healthcare costs, increasing workforce productivity, and increasing tax revenue. Vaccination has also proven to protect specific economic sectors such as travel and hospitality.

What are pros about immunization? ›

Vaccines are much safer. Natural immunity happens after you get sick with a disease. But diseases can be serious — and even deadly. A vaccine protects you from a disease before it makes you sick.

What is the purpose of the national immunization? ›

Under the Universal Immunization Programme, the Government of India is providing vaccination to prevent eleven vaccine-preventable diseases i.e.Diphtheria, Pertussis, Tetanus, Polio, Measles, Rubella, severe form of Childhood Tuberculosis, Hepatitis B, Haemophilus Influenza type B (Hib), Pneumococcal and Diarrhoeas due ...

Why does the CDC recommend immunizations? ›

Even for breastfed infants, vaccines are the most effective way to prevent many diseases. That's why it's so important to follow the immunization schedule. It ensures your baby's immune system gets the help it needs to protect your child long-term from preventable diseases.

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